If you read yesterday’s post you might be thinking, “But Alison I know the parents of a child with special needs and they are amazing and, when the child was diagnosed, I did think ‘If anyone can handle this…’ and I told them and they thanked me. So there!”
You know what? Before Christopher, I said it to another couple whose first child has Down’s Syndrome, and it was so true: they are amazing and the mother taught children with Down’s syndrome, as had her mother before her, I mean seriously, this woman had training and experience. If there was anyone who could handle a child with challenges…but when it was said to me, over and over again it wasn’t a comfort, it just felt like pressure.
This is what we need to ask ourselves before we speak to someone going through something: what are we really trying to say?
“I have so much respect for you.”
“You’re a wonderful mother.”
“I admire you.”
Back up. What we need to ask ourselves first: does anything need to be said at all?
I’m here to tell you, most cases, it doesn’t.
What do you think?
“Do you know what day it is?” I asked Christopher.
Yesterday in church, I found this note, recorded from last year, in my notebook:
“I like to sing. It’s fun” Eden said to Christopher.
“It would be better if there were disco balls.” He’s never one to keep a good thing from getting better.
“Oh yeah! If they were pink and purple!”
They would have had a great time at the first Pentecost.
In Michigan you can never say with certainty when winter is over and spring has begun, regardless of what the calendar might assert. And yet in March, with the milder days and increasing sun, most of us find cause for hope, but this year Christopher found cause for mourning.
“My hope for having snow days is now lost,” he said to me out of the blue. I nodded thoughtfully and, I hoped, neutrally; it’s rude to rejoice in another’s suffering.
“Now I have to hope for bus accidents or whatever.”
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